Work Package 1 – Analysis of existing models for managing elderly people with Cognitive Impairment and of their needs
Deliverable 1.1 – State-of-the-art of clinical and assistance management models and practices of elderly patients with MCI
This document presents an analysis of the state-of-the-art of clinical practices for attending patients with different degrees of Cognitive Impairment, both in general and in the settings where the DECI solutions will be tested. A thorough literature analysis was conducted, aimed at identifying the most widespread, evidence-based treatments for patients with MCI and dementia. Different integrated care models within different settings were also explored in the detail. The provision of care for patients with Cognitive Impairment and dementia was analyzed in four different settings: Italy, Sweden, Spain and Israel. A cross-analysis was finally conducted among all four studies, aiming at identifying the barriers and facilitators that could be addressed using DECI’s technology in the four pilot sites.
Deliverable 1.2 – Patient clusters
This deliverable aims to define the target population of the DECI Project, by giving the general definitions and boundaries that will be used during the Project, as well as specifying the variables and tests that will be used to analyze the target population in the different pilot sites and, then, subdivide it into various clusters. In particular, the DECI Minimum Data Set (MDS) is defined representing the minimum set of instruments (tests, scales, questionnaires, etc) needed for describing the target population during the pilot phase. MDS is used to standardize the data that each clinical Partner will collect during the pilot phase in order to allow comparisons across the test sites. Finally, the last paragraph includes a preliminary analysis of the target population in the four pilot sites.
Deliverable 1.3 – Patients, caregivers; and support and clinical organisational needs.
This document focuses on the most relevant needs and characteristics of elderly people affected by mild Cognitive Impairment and mild dementia and helps tracing all the most significant requirements that will have to be taken into consideration during development and pilot projects of the overall initiative. The patient needs and caregiver requirements are batched in clusters, associated to the assistance, support and care needs.
Deliverable 1.4 – Key performance indicator to be monitored (clinical management).
The identification of key performance indicators right from the first stages of the project allows a constant and durable monitoring of results throughout the entire initiative: short term goals and long terms objectives helps tracing the overall activity progress and planning underway measures whenever needed. These indicators are on the side of clinical management and focus on patient safety evaluation, analysing and defining relevant risks, avoided hazards, adherence to cognitive stimulation or physical activity.
Deliverable 1.5 – Design of the final pilot based on the pre pilot study.
This deliverable identifies the final number of patients, variables and services to test the services in elderly patients with MCI. This result will be used in WP5 during the piloting at the 4 countries. Furthermore, this document reports the business feasibility check of the DECI scenarios and the evaluation of the coherence between the two main results of the design process: general business models defined from a literature analysis (top-down perspective) and the DECI scenarios which emerged in Local Brainstorming Sessions (bottom-up perspective).
Work Package 2 – Business models and ICT solutions for digital services
Deliverable 2.1 – Benchmarking of the digital solutions used for assisting elderly people with Cognitive Impairments
Via a structured literature analysis and inventory of current running research projects, a benchmark is been made to analyze the different digital solutions for assisting older adults with MCI. The main functionalities, technological readiness and context where analyzed and compared to technologies available within the DECI project consortium. The available DECI technologies have a lot of similarities or have close common grounds to what is available in literature. As such they look promising – after some adaptations to fit the needs and functionalities from relevant professionals and non-formal caretakers (NFC) in the whole care process of MCI. In addition, there is a strong wish for inter-convertibility and interchangeability of different digital solutions noticeable in literature and current running projects.
Deliverable 2.2 – Business model of the digital solutions used for assisting elderly people with Cognitive Impairments
This deliverable aims at identifying the variables to be considered in order to describe the Business Model (BM) of a digital solution used for assisting elderly people with Mild Cognitive Impairments (MCI). The objective is reached through an analysis of relevant literature, case studies, good practices and key trends related to digital service solutions explored through Co-Creation Workshops (CCWs) organised with patients, caregivers and physicians. The analysis centered around the identification of the most suitable papers/projects/experiences, focusing on the most relevant variables for providing social-care services – enabled by digital solutions – to the specific segment of users tackled by the DECI Project. Four interrelated domains – service, technology, organisation and finance – are considered in order to gain a holistic view of the key points characterizing the BM, with respect to the STOF framework. The analysis is the focalized thanks to the use of the Business Model Canvas methodology for clustering of Business-Model-reltaed evidences derived from literature.
Deliverable 2.3 – Change management and introduction processes of the digital solutions used for assisting elderly people with cognitive impairments
Change Management practices will form a strong pillar of the four DECI Pilot Sites, by supporting the introduction of ICT-enabled functionalities within the four healthcare environments through a set of guidelines and indications for the fruitful management of the transition from the as is to the desired to be state. Therefore, Change Management guidelines detailed in this document will directly support design of Pilot Sites as part of WP 5 activities. Moreover, this document focus on the detailing of a set of indications and suggestions for the management of Pilot Sites change, which will have a direct impact on the success of Pilot Projects themselves.
Work Package 3 – Project Management
Deliverable 3.1 – Document describing the designed business model, the process with details on the procedure for carrying out the various activities and identification of area for the introduction of IT solutions
This document describes in details all the findings related to: Business Model implementation scenarios and relative support system definition; design of the Business Models for the delivery of assistance and independent living services; design of to be organisational and process model including variants for each local needs. The document aims to define 4 Country-specific Business Model (BM) Canvases containing a subset of the elements included within the General BM, which identified the variables to be considered in order to describe the BM of a digital solution used for assisting elderly people with Mild Cognitive Impairments (MCI) and Dementia.
Work Package 8 – Project Management
Deliverable 8.1 – Project Management Plan
The Project Management Plan is a living document/guide for all the Partners of the Project. A short introductions provides a a summary of the whole DECI Project, detailing its goals and main characteristics. The document then presents the implemented Project organization, including the names of the responsible Partners for the different Work Packages and Tasks, and of all the people participating in the various management bodies. The document then focuses on the overall planning for the first year of the Project, the resources allocated for each Task, the Deliverables to be produced and the milestones to be achieved. The document also provides indications on reporting and information management and details all the most relevant procedures and practices for the fruitful management of internal Project activities among Partners.
Deliverable 8.2 – Year 1 report on the project progress and status
This report summarizes all the results of the first year of DECI project. This description of the project progress and status is delivered to the European commission during the Year 1 review meeting that took place on 6th of July in Brussels.
Deliverable 8.5 – Data Management Plan
This is a living document that will evolve for the whole duration of the Project and, most notably, will describe the data management life cycle for all data sets that will be collected, processed and generated by DECI research projects, activities and initiatives. This document outlines how research data will be handled during the research Project and even after the whole Project itself is completed, describing what data will be collected, processed or generated and according to what methodology and standards, whether and how these data will be shared and/or made open, and how it will be curated and preserved. Ethics issues and related topics are also tackled, to provide a clear perspective on ethical management of information within project boundaries.